The Significance of Semantics

Another day, another podcast. Today, I was listening to an episode on the “crisis package”; a set of guidelines developed to better treat acute crisis in mental health patients, on Norwegian podcast Psykiateren (EN: The Psychiatrist), published on Spotify by the Norwegian Psychiatric Association.

This blog post should in no way be taken as criticism of the podcast nor the association – it is a brilliantly balanced and carefully edited podcast, and I applaud the fact that the Npf have made their scientific findings so easily accessible and digestible and cannot wait to get stuck in with more episodes. I highly recommend it to fellow Norwegian speakers with an interest in the workings of the human mind. Needless to say, this is a tremendously important and interesting subject, and although this particular podcast is largely curated for mental health professionals, I think many of us could benefit from having a listen – at least if you’re a Norwegian speaker.

Now, onto today’s rant.

What irked me – and essentially what made me feel inclined to hammer away at the keys – was a word the speakers continued to use in their conversation. The use of this particular word is something I have encountered in sessions with therapists, that many use the term ‘bad luck’ when expressing their concern for a person who has gone through some kind of trauma, such as abuse in childhood, rape or molestation. Which can be viewed by the patient as a suggestion that having ‘bad luck’ put them in that situation.

Listening to the abovementioned episode made me realise that their use of the word in professional conversations on the intrapersonal level might be the reason why it’s used with patients as well, which is what I would like to address below.

Firstly, it is not ‘bad luck’ that one person made a conscious decision to inflict violence or psychological terror on another. Emotional or physical abuse is often premeditated and has very little to do with luck. Life isn’t a scratch card.

Secondly, for many, luck is a concept based in supernatural beliefs, made to explain improbable events. In and of it self, luck cannot determine the outcome of someone’s life, but the choice to believe in it or not can affect real outcomes; i.e. it can be a self-fulfilling prophecy of extreme failure. There has been a lot of research on the matter, but you can read that in your own time, if you fancy. What is important here, is to see the difference is how you can interpret and use the word.

For most of us, we might use the word to lessen the blow for a child that’s just lost their first individual sports competition. We nonchalantly say it’s ‘unlucky’ so that they won’t give up when they realise it’s because they simply aren’t good enough to beat their opponents. We say it to make them feel better, so they’ll continue to strive for success so that they can get better and experience that important sense of accomplishment.

Yet, on the other hand, we don’t say it’s ‘lucky’ when they’ve won – a win would always be defined as accomplished by talent, even if the only reason they won the sprint was because the faster kid tripped on his own shoelaces and fell over (which would be an instance of real luck for the slower participant).

Nevertheless, it might be worth pointing out that this post isn’t about the word luck and its dictionary definition, but about how labelling someone with a personality disorder as ‘unlucky’ can be detrimental to a patient’s recovery. The word luck is just a word. A concept, really. And it doesn’t have much meaning, until it is preceded by the adjectives ‘bad’ or ‘good’.

For someone with a personality disorder, luck may have taken on a more definite meaning in your life, where you only see extremes or black and white. You only have the good or the bad kind of luck. If you’re stuck with the latter you are inherently unlucky, and nothing is ever going to get better anyway, right?

I’m quite sure that’s not what the professional is trying to do, but using that particular wording in an attempt to make light of a situation can make the patient feel like the severity of the impact their trauma has had on them is being undermined or trivialised. Put down to not having found enough four-leaf clovers in their life. Not to mention that it can downplay the importance of their own role in their recovery.

What’s more, quite a few people with OCD will at some point have encountered some form of ‘magical thinking’. For instance, ‘if I switch the lights on and off an odd number of times, I won’t become a paedophile’, or, ‘my blood test will come back positive, unless I walk up and down this staircase six times four times today’.

This sort of thinking might not make much sense to a lot of people, but I suspect magical thinking can make you feel as if you’re in control of something uncontrollable. Or, simply, that these situations are the only instances where you feel like you’ve any control at all.

Magical thinking can also be applied to the significance of numbers, or even colours. Which definitely brings us back to why ‘luck’ really shouldn’t be part of your vocabulary, and especially not ‘bad luck’.

You wouldn’t tell a patient that’s worked hard to get through their trauma so that they can start living their life without being afraid of flashbacks or intrusive thoughts that they can put the success of the treatment down to just ‘good luck’, would you? Was it just ‘good luck’ that got you your PhD?

For a person with a personality disorder, the word ‘luck’ can be very triggering, and in a worst case scenario may even exacerbate symptoms of OCD that in turn will worsen PTSD, making it even more complex and possibly more difficult to diagnose – complex matters can be difficult to compartmentalise.

One could of course discuss whether compartmentalisation is the best way forward, now that we know that people can have more than just the one diagnose, and that not all patients are dealing with a newly experienced trauma upon entry to the system. In fact, with rape, it can take years and years before the victim seeks help. Yet, the self-evaluating forms to be filled out by the patient during the screening process, especially with the Warwick-Edinburgh Mental Well-being Scale, still focus on how you feel today vs before the incident, worded in a way that suggests that the trauma has been quite recent and in a set period of time (often within the past two weeks). Statements such as, ‘I’ve been feeling loved’ are to be measured on a scale from X to X. If you haven’t had the ability to experience this in the past 25 years, that’s not an easy question to answer correctly if you don’t want to wind up diagnosed with depression and depression only.

For many survivors, the WEMWBS simply doesn’t apply, because there hasn’t been that acute change in their day-to-day for some time, it has just gotten to a degree of ‘worse’ that is now forcing them to make a choice between treatment and self-inflicted death. Bad luck for them, eh?

In summation, it might not be in the best interest of mental health professionals to continue using the term ‘bad luck’ in conversations with a patient with a myriad of comorbid symptoms that is struggling with the aftermath of a traumatic event, that being PTSD or otherwise, so please consider the words you put out in the ether more carefully.

In short, it’s okay to say ‘I’m sorry that happened to you’, but maybe be a bit mindful and refrain from saying ‘I’m sorry you’ve had such bad luck‘.

(un)happy Tuesday?

The sun is shining, the temperatures are finally reaching or exceeding a bearable level, and all aroud us are shiny, happy people in brightly coloured spring or summer clothes. So, in the words of Sheryl Crow:

“Why the hell are you so sad?”

Sheryl Crow (1996), If it Makes You Happy, Universal Music Group

Well, you have probably already heard about Seasonal Affective Disorder (SAD). Now, this is oftentimes referred to as ‘winter depression’, as it is most common to experience this during the winter months. However, a healthcare professional recently confirmed the validity of a theory of mine, that it’s actually possible to have a similar reaction to warmer, sunny weather, when I was airing to them my grievances around dreading spring because of the nagging feeling it brings with it, that you should be happy, just because everyone else seems to be – the latter often exacerbating the feeling of disconnectedness to society as a whole.

Wow, that was a long sentence.

This new information, of course, inspired me to investigate further, just in case I could find something that might help myself and others like me feel less like they don’t belong, so I will include some of my findings below.

Firstly, summer-pattern SAD is more common in people who are living with a mental disorder, such as bipolar disorder, ADHD or disordered eating; i.e., those of us who already feel as if we don’t belong.

Now, the American National Institute of Mental Health (NIMH) has published an educational fact sheet about SAD on their website, that highlights the difference in symptoms between winter-pattern SAD and summer-pattern SAD, and we can see that, in addition to experiencing more traditional symptoms of depression, those of us who are ‘summer sad’ can be subject to “insomnia, anxiety, aggression and restlessness”, to name a few.

Both types of SAD can affect the sleeping pattern, and most of us know what the lack of decent sleep hygiene over time can do to a person. So, is there a cure? A solution? Or should we just get over ourselves, even though we toss and turn all night, annoyed by the littlest creak from the bed? When the guided meditation podcast pisses you off to no end? When feeling like an outcast makes you hold your breath and raise your shoulders any time you have to go out into the real world? Absolutely not. There’s help to be found.

While the NIMH mentions psychotherapy and antidepressants as potential aids to lessen the symptoms of summer SAD, R. Morgan Griffin offers up some tips on how to cope on WebMD. So, regardless of if your condition is circumstantial and/or triggered by the uncertainties and expectations brought on by the occurence of summer holidays, change in office hours, et cetera, or if it’s biological, there are ways to make life a little easier when the black dog rears its ugly head at the most inopportune of times.

And finally, depression should not go untreated. You can read about how depression can change the brain on UCI Health. So, if you are experiencing detachment or a lack of ability to find enjoyment in or see the meaning of your own existence, do ask your GP to refer you to a therapist or social worker. They might be able to help lessen your load or just hear you out. If you are between GPs, or not in a place where you feel like you can trust anyone, you can check out Better Help, to see if online therapy is for you.

Most people would probably tell you to ‘just talk to a friend’, but there are a lot of us that either don’t have anyone to talk to, or we feel the need to spare our friends or colleagues from the ‘burden’.

Although, to a real friend, you letting your friend know what’s really going on with you would probably not feel as burdensome as you might think. A healthy friendship is transactional, so if you’re stuck in a situation where you’re being treated as your friend’s wailing wall, and they never ask how you’re doing? It’ll be absolutely fine – and probably necessary – to cut them lose.

I must emphasise that I am in no way a mental health professional, and that the above has been written to raise awareness and perhaps provide some gentle guidance. My views of both treatment and friendship are my own and should be regarded as opinion. I do not in any way endorse self-medication or self-diagnosis. You can read about the dangers of self-diagnosing in this article published on The Guardian.

Cheers for reading, I guess I’ll see you next Tuesday.

Apropos of The Big O

Just a year ago now, I was in my 30th year of living (or slowly dying) with the most self-effacing, all-consuming, terrifying disease, that I’ve let dictate my life for as long as I remember; obsessive compulsive disorder (OCD).

There’s still, seemingly, a lot of confusion as to what OCD actually is – a lot of people seem to think that it’s synonymous with being a bit anal about tidiness and wanting things to be ‘just so’. Sorry to say, but you couldn’t be more wrong. You can’t be ‘a little bit OCD’. Unless you actually are the disorder, you cannot be it (let’s be honest, this is just a matter of good grammar), and I’d argue that you can’t really have ‘a little bit’ of it either, as this thing can take over your life completely. If you don’t understand it, I am so very happy for you, but if you do, or if someone close to you suffers from OCD, I think you might benefit from listening to one of my favourite pods, that tackles the things in our lives that can be particularly challenging.

So, a year ago, I had been accepted into an intensive treatment programme of said disease, known as the Bergen 4-Day Treatment, and I was a fortnight away from complete upheaval – a massive change – to life as I knew it. A year later, ‘the big O’ is still lurking in the nooks and crannies of my subconscious, like a barracuda in shallow water, but I now possess the techniques to keep it underwater most of the time. Which brings me to the reason why I am writing this post.

This morning, I was listening to Bryony Gordon chatting to Tuppence Middleton about her experience with OCD (link to the podcast episode in the icon below), and I wasn’t long into the episode before I realised I was crying. Tears of relief? Sure. Tears of joy from the fact that there are others like me? Definitely.

Now, don’t get me wrong – I wouldn’t wish this on my worst enemy. It’s not that kind of ‘joy’. But stuff like this makes me feel like less of an outsider. So I hope that, by sharing this, someone else can find the same solace in knowing that you are not alone.

I cannot recommend this episode enough, if you want some insight into how the human brain can take over and make self-sabotage into something that, to the person, is perceived as a sort of coping mechanism. Which it oftentimes was, at least for me, in terms of my needing some sense of control in a life that had lost all its meaning and needed some structure.

The episode also tackles other important mental health stuff, so if that’s your cup of tea, you just might love this pod as much as I do.

Until next time – E xx

A pod a day keeps the darkness at bay

Good morning! I was just enjoying listening to one of my favourite podcasts this morning as I was getting ready for work, and found this episode from December last year (I’m catching up) really resonated with me – as I think it will with others struggling with addiction or neurological disorders as well, so I feel inclined to share.

In her not only disarming but entirely welcoming way of speaking to the listener, often alongside a medical expert and always interesting guests, Bryony Gordon tackles often sensitive topics most of the general public tends to shy away from in a non-judgemental and well-educated manner. This time, it was overeating disorder. You can read more about the disorder following the link.

It was Bryony’s book The Wrong Knickers that opened my eyes to the fact that there are others like me in this world, so I can of course recommend that as well. Today, this wonderful human being has become so much more than just an advocate for mental health – she’s a true inspiration, completely unafraid to get down and dirty with the “messier bits of life”, and she does so with gusto, care and delightful humour.

I highly recommend you have a listen by clicking the Spotify icon below, or you can give Bryony a follow on Instagram. Have a wonderful day, wherever you are!

adhd AI anxiety depression health life love mental health ocd philosophy Podcast podcastrec psychology relationships writing

We’re live!

Hello! Just popping in to say hi on this day of the birth of this site… What can you expect from my content, other than information about my book?

Well, I will be posting about things related to mental health, maybe some music stuff, books I’ve read and loved and random things that occur in this journey called life.

We shall see – nothing is written in stone yet, so, stay tuned!

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