Statistics, diagnostics and the media – why certain news should only be distributed by experts

This is a double-edged sword. On one hand, we have the right to information that concerns us, yet on the other, the information gathered from these reports is often misinterpreted by uninformed journalists and thus miscommunicated through news outlets that fit their headers to accommodate the most clicks, instead of conveying what the researchers have found. (By uninformed, I mean that most desk journalists lacks the specific expertise to be able to understand properly the context and how scientific research is conducted, not that they are unintelligent.)

Uncritical A/B testing practices symbolises the death of integrity in modern media.

In short, psychological research should be published via professional channels and localised to the target audience, to prevent misunderstandings that can lead to the spreading of false information, or worse; greater socioeconomic inequality.

Because the fact remains, that mental health articles published by your bog standard online news outlet often refers to sufferers from mental (and physical) illness as a ‘them’; a third-person object.

I recently read somewhere, that ‘poor people have mental health issues and mental health issues lead to poverty’. That was the gist of it anyway. With that whole ‘third person’ mentality, one could assume that the tabloid readers and the more affluent members of society will take this to mean that the mentally ill are a burden on society. Maybe even the reason why the economy is in the shitter, so to speak. I am inclined to believe that news sites relying solely on A/B testing to increase their readership make matters far worse in those few instances they’ve got some actual news to report.

It’s the same with any articles on certain diagnoses; they are presented as a peculiar subject, something weird or bizarre, rather than something that affects a lot of people, both directly and indirectly. Of course, so-called reality shows such as The Undateables aren’t helping. And, no, I will not link to such horrific social pornography (for lack of a better term).

The solution to changing how mental illness is viewed is simple; psychoeducation. If the general public was to be presented with proper explanations and definitions by mental health experts, they, WE, would understand that everything is not as black and white as the media presents to us in its current uncaring and often ignorant state.

There are plenty of official networks and non-profit mental health organisations that publish research findings and psychology related news through easily digestible articles, but they are drowned out by the noise. Some of these, however, I will link to at the bottom of this post.

So, why should we care about psychoeducation, especially if we are not experiencing illness ourselves? I’m glad you asked. The World Health Organisation published numbers from 2019, indicating that as many as “1 in every 8 people worldwide are living with a mental disorder“. It would be fair to assume that more than one of ‘1 out of 8’ of us have carers, family or friends, or even colleagues, that are indirectly affected by our illness in some way. Not to mention that a lot of disorders can be hereditary. If we understood everything a little bit better, it might be easier to cope with certain things. Mass media are not the right communicators for this particular job.

Psychoeducation is important in a patient’s journey to recovery from or management of any mental illness, regardless of age. One can argue that it is essential – in order to understand yourself and your condition, you must first understand how it affects you. Science Direct has a more in-depth article on psychoeducation available on their site, if you want to learn more about what this entails.

Furthermore, psychoeducation can provide you with tools for when the mental health services close down after office hours or on bank holidays, which, for some, can be the most challenging parts of the year. As a bonus, proper psychoeducation can help everyone around you to understand things a little bit better as well. Wouldn’t it be nice if the nuanced field of psychology could be presented by someone with a passion for it, rather than someone that’s been told to ‘make the headline clickable’?

That’s probably more than enough for today – and I have some psychoeducation of my own to get back to. Thanks for reading!

See you next Tuesday.

Here’s a list of excellent outlets for those of us who want to learn more about ourselves and our loved ones:

Mental Health Mates UK

The ADHD Foundation

OCD UK

Depression UK

Anxiety UK

I would also like to recommend the following two podcasts, one of which tackles how mental health issues affect our daily lives in delightful, laidback, and sometimes emotional, human conversation, and the other an ADHD specific podcast, which offers interviews with leading experts on the field, as well as well-known guests.

The Life of Bryony

ADHD Chatter

The Power of Luff*

Recently, I was rewatching the first series of Santa Clarita Diet on Netflix (brilliant show, by the way), where the husband, Joel (portrayed by the brilliant Timothy Olyphant), mentions a possible cure for his wife Sheila’s altered, undead, state. Sheila (played by the one and only Drew Barrymore), however, is hesitant, as she is getting so much done, now that she has more energy and needs less sleep. At one point, she even exclaims: “I can parallel park in one move now!”

You might wonder where am I going with this long-winded introduction, other than displaying my love of gore and humour intertwined. Rest assured, I am about to get to the point (rather than rambling on about how I, too, would like to be able to parallel park in one move).

Although I am not undead now that I am medicated (unlike my experience with antidepressants), this really made me think; do I really want to go back to the old me? Can I be successful in life without medication? They’ve had such an immense and immediate effect on me, that I am afraid to go off them. To illustrate:

Within 30 minutes of having taken my first pill, something bizarre happened, in the way I have always imagined an acid dream might feel like. Before this, I would compare my brain to a chaotic second-hand shop, where you really have to dig around to find the good bits. Now, someone had switched on the lights and mister Cerebellum had transmorphed himself into a neat library, with every book and folder in its designated place, on long aisles arranged in alphabetical order. Even my photographic memory – that I thought I’d lost to years of drinking – has started to come back. For me, this was a life-altering experience.

Now, I am not suggesting medication is for anyone – this is about my personal experience, which is why I have excluded the type of medication and whether or not this is the only medication I am on. I am not a medical doctor and do not offer any advice on medication. The featured image is for illustrative purposes only.

Anyway, for someone previously so anti-pharma, this was a point of reckoning for me, that led to some serious soul-searching. I could not discount the effect of the medication, and it helped me focus enough to start and complete three exam papers in as many days. Instead of having to stop and think about everything to remember, I was now able to enter a room and do the thing I had gone in there to do, instead of shaking my head in frustrated confusion as to why I had moved in the first place after crossing the threshold. The song lyrics I’ve written myself, but find so difficult to remember, just poured out of me when the time came to sing them. I stopped doubting myself all of the time. The intrusive images that have haunted me for as long as I can remember were gone. My impulsivity halted and my compulsion to continue drinking or eating when I’d had enough evaporated. This, in turn led to less stress and I started to feel as if I could breathe properly.

Eventually, the effect subsided within a few days and I had to up my dosage to get an effect. The same happened again after another week or so. Then, it just sort of stabilised and the fear set in: Had I imagined the effect out of pure desperation? Would my symptoms come back little by little?

Naturally, I quickly started setting myself up for failure by pushing my boundaries, slowly breaking the new, healthier routines I had adopted, like an obstinate child. I remembered myself elatedly saying that, ‘If this works for only a week, I’ll be grateful to have had that one week where I was normal. Among the living’. Now, the Id had taken over and was on a mission to convince me that I had somehow jinxed myself by uttering those words. Of course, the anxiety caused me to fuck up. I started forgetting things again, struggled to regain focus, let my impulsivity get the better of me.

Although, what I now realise, is that I am still significantly better than I was before I started taking my meds. It is not a placebo. My natural constant hankering for dopamine makes me think that the fact that I don’t have my world turned upside down every time I take a pill, means it’s not working.

Demonstrably, my attention has improved – I am able to focus on everything when needed, not only what I am interested in. I no longer get distracted by the sound of a car driving slowly over rocks on the street outside my window. My working memory has vastly improved. But I am still me; curious, empathetic, caring, fiercely passionate about justice and equally perturbed by injustice.

I might be a bit sensitive-skinned sometimes, or reading too much into things, but at least I now know that that is down to my rejection sensitivity and that I don’t have to walk around thinking that I’ve hurt someone simply because I texted them back ‘OK’ with no emoji. (At least I texted them back, eh?)

I do wonder if I’ll ever feel strong enough to go off the meds, though. In the meantime, I’ll be here, diligently teaching myself new coping mechanisms and preparing for a life in the real world. I will persevere, somehow. I always have done. Will I succeed? That depends on how you define success.

See you next Tuesday.

If you liked my writing and fancy checking out my book, you can head on over to the section where I’ve written all about where you can get a copy – available in paperback and digitally.

If you want to watch something beautiful and thought-provoking, you should check out Sensitive Skin.

For anyone craving a gorgeous listen, you can check out the Gary Numan album I’ve linked to below. Should be played with headphones on, or through proper stereo speakers for max effect. Excellent running music!

*Luff (noun): the act of sailing a ship nearer the wind

Apropos of The Big O

Just a year ago now, I was in my 30th year of living (or slowly dying) with the most self-effacing, all-consuming, terrifying disease, that I’ve let dictate my life for as long as I remember; obsessive compulsive disorder (OCD).

There’s still, seemingly, a lot of confusion as to what OCD actually is – a lot of people seem to think that it’s synonymous with being a bit anal about tidiness and wanting things to be ‘just so’. Sorry to say, but you couldn’t be more wrong. You can’t be ‘a little bit OCD’. Unless you actually are the disorder, you cannot be it (let’s be honest, this is just a matter of good grammar), and I’d argue that you can’t really have ‘a little bit’ of it either, as this thing can take over your life completely. If you don’t understand it, I am so very happy for you, but if you do, or if someone close to you suffers from OCD, I think you might benefit from listening to one of my favourite pods, that tackles the things in our lives that can be particularly challenging.

So, a year ago, I had been accepted into an intensive treatment programme of said disease, known as the Bergen 4-Day Treatment, and I was a fortnight away from complete upheaval – a massive change – to life as I knew it. A year later, ‘the big O’ is still lurking in the nooks and crannies of my subconscious, like a barracuda in shallow water, but I now possess the techniques to keep it underwater most of the time. Which brings me to the reason why I am writing this post.

This morning, I was listening to Bryony Gordon chatting to Tuppence Middleton about her experience with OCD (link to the podcast episode in the icon below), and I wasn’t long into the episode before I realised I was crying. Tears of relief? Sure. Tears of joy from the fact that there are others like me? Definitely.

Now, don’t get me wrong – I wouldn’t wish this on my worst enemy. It’s not that kind of ‘joy’. But stuff like this makes me feel like less of an outsider. So I hope that, by sharing this, someone else can find the same solace in knowing that you are not alone.

I cannot recommend this episode enough, if you want some insight into how the human brain can take over and make self-sabotage into something that, to the person, is perceived as a sort of coping mechanism. Which it oftentimes was, at least for me, in terms of my needing some sense of control in a life that had lost all its meaning and needed some structure.

The episode also tackles other important mental health stuff, so if that’s your cup of tea, you just might love this pod as much as I do.

Until next time – E xx

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